Volunteering

Chair of Trustees Jeans for Genes Campaign

Location: London

Date Posted: 12/02/2021

Closing Date: 23/03/2021

Job description

Jeans for Genes® is the UK’s largest fund-raising campaign to benefit those affected by genetic disorders. Genetic disorders affect approximately 1 in every 25 births. Many conditions affect fewer than 10 in a million births and some are so rare that they don’t yet have a name.

Working closely with schools, workplaces and individuals to promote the annual Jeans for Genes® campaign, we have so far raised over £45 million, the profit from which is distributed as grants to some of the smallest specialist charities.

With a 25 year history, this is an established brand that has already made a huge difference to our community.  We have ambitious plans for the future so we are creating a team to deliver this vision to extend our reach and support.

The Jeans for Genes® campaign owner, The CGD Society, is creating a new charity whose remit will be to manage and extend the Jeans for Genes® brands and to maximise the grants that can be given to genetic disorder charities. To this end, Jeans for Genes® is looking for a new Chair to lead a board of trustees capable of taking the campaign and brand to a new level.

Working with a part-time CEO and assisted by 2 co-opted trustees from The CGD Society, the chair will lead a board of trustees with the necessary skills to oversee governance and management of this new independent fund-raising, grant-making charity. We have an experienced and enthusiastic marketing and fundraising team in place, so the task is to oversee their exciting plans to deliver the goods in 2021 and thereafter.

Required experience and skills

  • Previously held executive or non-executive board position in a charitable or commercial entity
  • Previous experience of chairing a board or senior management team
  • Knowledge of UK company governance requirements

Beneficial experience and skills

  • Experience of building and leading teams with diverse skills
  • Knowledge of UK charity governance requirements
  • Modern marketing and fund-raising methods
  • Digital service delivery knowledge
  • Educational or healthcare sector experience would be beneficial
  • Experience or knowledge of a rare genetic condition and this charity sector would be advantageous but is not a requirement.

 

The role of Chair of Trustees is voluntary and unpaid (other than expenses) but very rewarding. A regular meeting schedule will be established for Trustee Board and Management Board meetings, the majority of which can be virtual. Face to face meetings would be in London if required. A maximum of eight trustee meetings in year one is anticipated but potentially fewer once established.

More about The CGD Society

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